The Commonwealth, state and territory governments are working together to develop a National Disability Data Asset (NDDA).
The NDDA aims to improve inclusion and opportunity for people living with disability in Australia. It is planning to do this by linking data to better understand the life experiences of people living with disability. Better information can improve supports and services because it shows what helps people achieve positive outcomes.
The NDDA is currently in an 18-month pilot phase so we can learn how to best share data between governments to gain a better understanding of people’s life experiences and outcomes. The pilot started in April 2020, following an agreement by the Australian Data and Digital Council in September 2019 to develop an enduring National Disability Data Asset, subject to sustainable funding.
The NDDA pilot is placing very high importance on safeguarding data and protecting privacy. As part of the pilot, only authorised people can access data and the people who access the data must follow strict ethical rules – all to protect privacy.